The awe inspiring story of Jonathan Pitre. (Video)

Jonathan Pitre is probably not a name you;ve heard before, but it's one you're likely going to remember for a while. Jonathan Suffers from Epidermolysis bullosa one of the most horrible diseases I have ever heard of to be quite honest. Jonathan has the worst variant of the disease know as Dystrophic epidermolysis bullosa, and he is known as a butterfly child. Children like Jonathan are given the name Butterfly Child because their skin is considered to be as delicate as that of a butterfly's wing. Essentially any friction can cause Jonathan;s skin to peel off, leaving blisters like those of a third degree burn victim. It takes tremendous care to carefully wrap his body each day so he can live even a semblance of a normal life. The Ottawa Senators heard his story and decided to invite Jonathan, who considers himself a bit of an Ottawa Senators expert, to be an honorary scout for the day. Jonathan isn't just your average kid, he shows tremendous knowledge of the game when sitting in the stands analyzing the game with a member of the Ottawa Senators scouting staff. It's incredible to see this young man who struggles with so much in life, show such tremendous passion for the game he loves. You can see the video of Jonathan's special day with the Senators here courtesy of the NHL.